I want to thank you all so much for the support and love. I also want to explain a little about what her getting this wheelchair means.
Since she was 3 months old she was receiving weekly in-home physical and occupational therapy services through Inland Regional Center. They offer infant stimulation/massage, speech, physical, and occupational therapy. It's a state funded not-for-profit program that provides these services and programs to more than 30,000 people with developmental disabilities and their families in California until the child reaches the age of three.
The last year we have been receiving therapy services through a state-funded program and they also provide loaner equipment. Up until now you've see Fin on different loaners. This will be the first equipment that is our very own.
Fin will be transferring over to the School District as she will be turning 3 in July and will age out of the early intervention therapy program. Which means she will be in pre-school. I know, I'm already crying about it. My baby in preschool.
She will use her walker and get pulled out of class for different therapies throughout the day and week while she is in the classroom. The wheelchair will be for transporting her room to room, bathroom, assemblies, and fieldtrips. It's for her safety.
When you see pictures of her in her walker I'm very close by. She isn't able to get into it herself, so she will need to be monitored closely while at school. The idea of the wheelchair stung a little, I'm not going to lie. But seeing her so happy in it made my heart burst with joy.
It's in these moments that I'm grateful to be a special needs mom. I'm always a proud one, but the gratefulness comes in waves. We aren't sure how long the wheels will be with us, could be forever or could be three years... We are going to have lots of ups and downs I'm sure, but I'm excited to reach this next chapter.
I want to thank every single one of you who tell me about the SDR surgery. We have reached out to Dr. Park's office and are in the application process. We are not sure yet if our insurance is going to cover it yet. I will definitely be keeping y'all updated.
Please don't be a stranger and if you have any questions please email me!
Fifiandmo@gmail.com
💚
This image is beautiful. My heart says -- oh no, because society sees wheelchairs as a limitation but when you explained all the things your Finley can do with it-- oh my... ❤️❤️ Perspective.
ReplyDeleteI am so delighted to hear you have reached out to Dr Parks team. Deanna and everyone there are amazing. As we are from Ireland we had to self fund, and raised nearly €90,000 for sdr surgery, heel cord lengthening surgery and two years of private physio back in Ireland. If your insurance doesn't cover it, it's not the end of your story. I wish u all the love and luck in the world. Don't hesitate to contact me if you have any questions. 💕💕 Catriona x
ReplyDeleteI am so delighted to hear you have reached out to Dr Parks team. Deanna and everyone there are amazing. As we are from Ireland we had to self fund, and raised nearly €90,000 for sdr surgery, heel cord lengthening surgery and two years of private physio back in Ireland. If your insurance doesn't cover it, it's not the end of your story. I wish u all the love and luck in the world. Don't hesitate to contact me if you have any questions. 💕💕 Catriona x
ReplyDeleteI was a teachers aid for challanged childern with the public school, one young man in a wheelchair, the only time he had fun & smile was in his wheel chair with current heavey rock music. God bless him, he,d smile out loud with a full body laugh, with his poor wind swept self as i danced that big wheel chair of his. God bless these challenged souls who so throughly touch my challenged brokeness. ;) we all need to dance if but only in our hearts. God bless you little mom & dance your precious baby daughter as often as you can. When i dance i feel like a great tall tree gracefully in the wind. But i look like a clumsy stiff thing that would break in a small wind. But LOL IT SURE FEELS WONDERFUL,like my soul is being fed. :D
ReplyDeleteI was a teachers aid for challanged childern with the public school, one young man in a wheelchair, the only time he had fun & smile was in his wheel chair with current heavey rock music. God bless him, he,d smile out loud with a full body laugh, with his poor wind swept self as i danced that big wheel chair of his. God bless these challenged souls who so throughly touch my challenged brokeness. ;) we all need to dance if but only in our hearts. God bless you little mom & dance your precious baby daughter as often as you can. When i dance i feel like a great tall tree gracefully in the wind. But i look like a clumsy stiff thing that would break in a small wind. But LOL IT SURE FEELS WONDERFUL,like my soul is being fed. :D
ReplyDeleteI was a teachers aid for challanged childern with the public school, one young man in a wheelchair, the only time he had fun & smile was in his wheel chair with current heavey rock music. God bless him, he,d smile out loud with a full body laugh, with his poor wind swept self as i danced that big wheel chair of his. God bless these challenged souls who so throughly touch my challenged brokeness. ;) we all need to dance if but only in our hearts. God bless you little mom & dance your precious baby daughter as often as you can. When i dance i feel like a great tall tree gracefully in the wind. But i look like a clumsy stiff thing that would break in a small wind. But LOL IT SURE FEELS WONDERFUL,like my soul is being fed. :D
ReplyDeleteI too have mild to moderate CP spastic dipligia with ataxic tendancies. I am 30 yrs old and walk with a rollator walker
ReplyDeleteFirstly I pray for your baby and her best wishes. This is very important article and I hope that their all facility are very good and especially SDR surgery.Thanks for sharing about our Wheelchair Pic.
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I have been under physical complications for a long time and then this portable lightweight wheelchair helped me a lot. I am much in debt to it.
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